June 30, 2007
June 29, 2007
June 26, 2007
We have strawberries galore here! My mom and Noah went picking over the weekend, and he came home with some serious berry-yumminess.
I think summer has got to be the best time for people, especially diabetics nutrition -wise. Fresh fruits and veggies in season seem to taste better than any other time of the year.
We try to encourage healthy choices often, but breakfast is tough around here. If we let Noah eat waffles, bacon and english muffins every day, he'd be perfectly happy. Getting him to try oatmeal took alot of smart and clever parenting tricks (by that, I mean bribery) and he hated it. So fruit is what we rely on to not feel like terrible parents who feed the kid junk all the time!
June 22, 2007
I swore I'd never allow my young child to have a cell phone. It was just one of those things that made me kind of an old-fashioned mother. No cell phone. No DVD player in the car, etc. No matter how much Noah begged for the last couple years, (let me remind you, he's only almost 9) My answer was always the same; "when you get older and are doing more after-school stuff, then you can get one."
2 days ago, I got my almost 9 year old a cell phone. I had to cave and go against everything I've been saying for years. It's strictly for medical reasons - so he can stay in touch with me during his day camp this summer. I feel good about it. My husband and I are pretty confident that he'll be responsible, but in the back of my mind I remember what it's like to be almost 9 with a new cool toy (even though mom and dad have STRESSED that it's not a toy) and showing off to friends is going to happen. He will geek out with that phone and I'm sure a lesson or two will be learned within the first week, (son, DO NOT text the word "boobs" to your friends) but it's a small price to pay for my piece of mind.
June 18, 2007
June 12, 2007
Now throw diabetes into the mix, and it seems like every little thing is the battle scene from Braveheart. It's hard to get people to understand exactly what Noah goes through on a daily basis. One member of my family thinks to this day, that his diabetes can be controlled by diet and diet alone. I have to shake my head and explain -again- that he basically needs his pump to live.
Then there's school. For the most part it's been ok. The school nurse is one of the most wonderful people that has entered into our lives. She really gets it - she has truly done her homework and so genuine in her concern for these kids she sees every day, it's enough to make you tear up a little. She called me yesterday to tell me that Noah had been low when he tested right before a walking field trip to visit the Police Station. He was very upset and his mood swung even more when he was told to stay and have a snack. I guess the teacher couldn't wait 5 minutes, because they left without him. When the nurse couldn't reach the principal to see if she could bring Noah over there (it's literally 1/2 a block away from school.) she called me , and I got him and drove him over to join his class. When I saw the teacher , I began to explain to her that he was fine now, and that his test kit and juice are in his bag....she cut me off mid sentence and said "well we are almost done here".
I was so upset, I just turned on the spot and left. I am sad for my son. Sad because in trying to help him feel completely normal with this disease, he is still being singled out. Some battles you just can't win.
June 8, 2007
Note: A dash indicates no data is available.
June 6, 2007
June 5, 2007
Last week, Noah, my mom and I went to Florida to see my grandfather for his 80th birthday. It was the first time we went away from home since his diagnosis (yes, first trip in 2 years- I'm a nervous mother) and needless to say, I was a little frantic with the preparations.
I packed and re-packed. Checked and re-checked. Government websites were consulted to make sure we could get through the security checks alright. The Freestyle attached to the Cozmo set the metal detector off twice, which resulted in a pat-down search. eeek!
The one thing that we were most afraid of, but thankfully were extremely prepared for, happened. TOTAL PUMP FAILURE.
I read that literature about a gazillion times to make sure swimming wouldn't hurt the pump. I went over the casing with a fine-toothed comb to see if there were any cracks, scratches, etc. We even did a test run in the shower. First day in the pool and the thing pooped out on us. dead. done. finito.
Oh crap, no!! After a brief but teary visit to the bathroom I gathered myself together, and called the 800 number on the pump. I love the Cozmo people- the woman I spoke to was so calming and helpful as I explained my situation of being away from home and freaking just a bit. She took down my grandparent's address and said UPS would deliver by 1:00 the next day!! I thanked her about a gazillion times, and dug out the spare glucose meter, and syringes ...glad I brought them!
The new pump arrived early at 11:00 the next day! Less than 24 hrs and we were back in business. It wasn't a total disaster, but it very well could have been. Being prepared saved us alot of headaches .Not to toot my own horn, but being a nervous mother has finally paid off!
So here's a checklist for travelers who may be embarking on their first trip after a pump start. Feel free to comment with your own helpful hints!
1. Letter from your physician explaining your need for medical supplies on the plane.
3. alcohol wipes, lancets, infusion sets, cartridges, etc.
5. syringes (even if you don't use them, keep them on you for emergencies)
6. Write down all your pump settings. Even if you have a photographic memory, believe me, when you're stressed you won't remember squat.
8. stash of snacks for lows...those little juicy juice boxes are perfect at 15g carbs and we found these gummy things -Sunkist Fruit Gems- you can get them in the bulk candy bin at the supermarket. They are awesome for travel and are individually wrapped so you can trow them in your bag, pocket, cup holder.
9. Clear plastic zip-top bags to put it all in.
Lastly, carry on everything you will need. Don't think you can get by without your supplies with you at all times. Test often and you will have a wonderful and safe trip with minimal snags.
June 4, 2007
My first post and I have so much to say. Where do I start?
I have been quietly reading all of these wonderful d-blogs and it has really opened my mind and my heart to the fact that we are not alone in this. My son was diagnosed with type 1 in 2005, and started pump therapy in November of 2006. Noah will be 9 soon and handles his daily struggles pretty well.
My hope in creating this blog is that anyone who is feeling a little lost in the sea of diabetes stuff can read and feel not so alone.